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Genetic Testing: Implications for your future

Contents

Leader and Presenter Biographies vii

Opening Comments
Charles G. Hertz, M.D. xv

Presentations
Principles of Risk: Health, Disability, Life/Philip J. Lehpamer, F.S.A. 1

The Current State of Genetic Testing in Health Insurance/ Paul R. Lenz, M.D., F.A.C.P.E. 11

The Current State of Genetic Testing in Life Insurance/J. Alexander Lowden, M.D., Ph.D. 19

First Participant Discussion 29

Presentations
Update on the Human Genome Project/Francis S. Collins, M.D., Ph.D. 45

Fashioning a Reasonable Interim Policy: Conclusions of the Insurance Project/Alexander M. Capron, LL.B. 55

Ten Keys to Life Insurance Industry Success with Genetic Testing/ 65
Donald C. Chambers, M.D.

Second Participant Discussion 71

Presentations
Fairness, Equity, and Justice/Robert J. Pokorski, M.D. 79

Followup Discussion 85

Presentations
Predictions and Precautions/Karen H. Rothenberg, J.D., M.P.A. 105

Confidentiality, Privacy, and Information/Pamela Sankar, Ph.D. 11

Insurance and the Economics of Information/ James C. Hickman, Ph.D., F.S.A. 121

Actuarial Implications of Genetic Testing/David J. Christianson, F.S.A. 127

Closing Comments
Charles G. Hertz, M.D. and Arthur L. Caplan, Ph.D. 133

Participants 137

Bibliography 145